“That’s not my mom/grandmother/dad/grandfather, etc.”
I promise you it is. They’ve been altered by disease, but it didn’t erase their identity. They still have many of the same personality traits and interests and memories that they always had, and even the parts that have changed can still be worth knowing. There are those who only know them as they are now, and they can still find them funny and fascinating and likable and endearing, and you don’t want to miss out on this part of their life.
“I don’t want to remember them like this.”
So you’re admitting your love of them is conditional? That there’s a certain point that disease or disability can bring them to where you no longer wish to know them? Their decline may be difficult to watch, but you can’t abandon them to deal with it alone. If you really love them, you can love them through every point of their life. Don’t let fear cast out love.
As someone who has spent a great amount of time around the disabled, especially around those with alzheimers and other dementia, the worst thing you can do if you love them is to leave them lonely.
The elderly are so lonely. They have few visitors in nursing homes filled with elder abuse. They are forgotten by the world. Their dementia does change them. And it will be the hardest thing you watch as they slowly lose function and their sense of self. I went through it when I was my grandmas caretaker at 16 yrs old. She had Alzheimer’s, parkingsons and hallucinations. Even to this day I miss her so much and she has been gone going on seven years.
But if you give yourself a chance to care for these people, for your loved ones, and approach it with love and compassion you’ll find the most profound moments of joy and life in the midst of loss and grief.
What people don’t often know is that there is something called “anticipatory grieving”. We grieve preemptively when we expect loss, like when a loved one is given a terminal diagnosis like dementia. People should be aware of this so their feelings don’t hamper their decision making process when it comes to decide what to do with a loved one.
Caregiving is stressful and difficult. Burnout is common. If you find yourself in the caregiver role don’t be afraid to ask for help, or get respite. You don’t have to do it on your own, and the moments you spend with your loved on will be precious to you when they are gone.
In memory of Grandma P


